Showing posts with label Newtown. Show all posts
Showing posts with label Newtown. Show all posts

Wednesday, April 17, 2013

I feel so petty, but as my psychiatrist said to me years ago...

... my problems are my problems and I shouldn't try to minimize them by comparing them to other people's problems as I can always find someone with bigger problems than I have.

Days after a bombing in Boston at the finish line of the Boston Marathon where 3 people lost their lives, over 150 were injured and countless people were traumatized by the event; Hours after the senate has decided to shoot down the only promising gun legislation; a few months after the Newtown shootings where too many little children were murdered in their classrooms, I'm feeling sad for my own circumstances.

I've mentioned before that I have a son with autism. I also have a son who has strong ADHD. My older son, is very intelligent, independent minded, likable, considerate and loving. But he is a terrible academic student due to his disorganization. This past marking period was his worst ever - his junior year in high school. I'm looking at his college opportunities shrivel and I worry about his future.

Then today I went to the IEP meeting for my son in 2nd grade. The school is excellent at helping him with his needs, but he struggles. He needs help every day with reading, writing and math. Not with the subject material, but with engaging in the material and doing it. It's getting better, but he still needs 6 hours and 30 minutes a week of support.  Add to that, this child that started reading at age four has now been bumped down a reading level because of his comprehension level and now my real fears begin to appear. I know he has problems with comprehension and not just with books, but with language period. He can mimic anything, but he doesn't decipher it well. Then throw in his difficulties with getting stuck in routines and difficulty with peer interactions.

Everyone likes him as he's sweet and considerate and cute, but how far will that take him? How far will he lag behind? Just as he catches up and goes to above grade in math, he is struggling in language based subjects, which I knew would eventually happen.

Then, after school, we went to a science fair planning meeting. Now, all the kids were antsy as they had been in classes all day, but my child? flapping, pacing, totally disengaged unless made to engage and I could see it was literally painful for him to engage. I watch his like aged peers giggle with each other and chitter-chatter and then see my son pacing in the back of the room, flapping, in his own world and I worry.

There are times I get so hopeful. On Monday we had real, true, back and forth conversation. It was wonderful. I jump with joy every time I see new behaviors that have been delayed, but then I get slammed with reality. His one step forward is still 10 steps behind everyone else. And his autism is very high functioning. And I feel bad for having woe is me moments when as far as the spectrum goes, he's doing so well in mainstream classrooms with just a little support, but where will this lead him?

And I hate that I hate autism. When we were trying to conceive him, I begged my body to not give me an autistic child. I got a lump in my throat every time I met another parent who had an autistic child. So many of my husband's peers had autistic children. After my son was born and I saw he gave good eye contact and engaged with me, I sighed in relief, but even then, very early on, I started to worry as one thing after another seemed a bit delayed.

I struggle with myself in wondering, "did I cause this?" I've posted about it before but was my blood sugars an issue? My blood pressure? My diet? My obesity?  Our combined maternal and paternal ages me (35) and my husband (38)?

And as he grows and my older son grows I wonder, "Are my expectations too high?" Is it right for me to expect my highly intelligent son who suffers from very debilitating ADHD to get into good colleges? TO even go to college straight from HS, versus community college? Do I push him too hard or not enough?

And same with my younger son. Am I expecting him to be to function too well by always having him in mainstreamed activities? Should he even be doing a science fair? Should he go to school or be home schooled? Am I coddling him too much? or not enough? For either of them?

Days like today I feel like my kids have such huge battles in front of them and I don't know if I've done well by them. I know I could have done better and could do better, but even if I did things perfectly, would it be enough? Probably not.

It's just one of those "wow... this parenting gig is hard" days. But now to the gym to try to work some of these frustrations out.


Sunday, December 16, 2012

A weekend of such mixed emotions

The weekend started with such a horrible feeling in my heart. Learning of yet another mass shooting and this time with little ones as the victimes, less than two weeks before Christmas. It just made me realize all the more how lucky I am - now and always.

While that was with me all the rest of the weekend (and will be for a long time - and I will be more and more proactive about things) I also had a very wonderful weekend.

I spent 7 hours on Friday baking and decorating cookies. I could have seen it as one huge duty I needed to do, but I didn't. I made between 450-500 cookies. I had already planned my talk for Sunday School, practiced it and polished it as well as it could be. I could see the house would be cleanable in a whirlwind vacuum and dusting on Saturday, so I set to baking.

My mother in law (just home from a cruise and a bit under the weather) said "I am beginning to hate Christmas". How sad really. To her it just seems like one big duty. Oh, if she would only stop thinking of all the "duties" and just enjoy - take in how excited her grandson gets. Notice how people light up with a cheerful smile. Make something yummy and watch people enjoy. Sure, some of the prep can be difficult or labor intensive, but just hold onto how wonderful the payoffs are. That's what I do!

Friday night I organized all the baked goods for Sunday School, sunday platform, the Cookie exchange party, my husband's holiday party, my son's school teachers and the left overs for the family. I cleaned the kitchen and then soaked in the tub and readied for Saturday.

I spent most of Saturday cleaning. I picked up the family room, moved the clutter out of the basement, tidied my son's room, got my husband to dust, my older son to run the vacuum, and I made the salad and then got everything arranged/set for the party. We had a wonderful, wonderful party. There were 40 people, 14 of them kids. Oh my goodness, their wonder and joy is so catching. I had my son set up a couple of trains - kid heaven. The basement was a rec room fun fest. They were having so much fun doing everything else, they didn't even want to stop and make the gingerbread trees! Only the arrival of Santa got them interested in leaving the fun stuff and then they were ready to make the gingerbread trees after Santa's visit.

After the party I was smiling ear to ear. I was tired, but happy. To wrap up the day, my husband and I cuddled on the couch with a spiked eggnog with rum (and oh boy, a good eggnog is sooooo much better than the cheap stuff!)

I got a full night of sleep, showered and loaded up the car for today's Sunday. I was giving the talk today which is already a bit stressful, but today was the first ever chorus rehearsal too and I had a stand-in for my usual role. Then, I had a gay/lesbian panel for the sex. ed class I usually teach, and I had a stand in teacher for that class too. And it all went so well - the talk, the chorus rehearsal, the guest panel. Yay!!!!

We came home, ate a quick lunch and then I went to my first ever cookie swap. It was fun to see what people brought to exchange and I even got to finally meet a local person who I have gotten to know a bit through Facebook and that was nice.

I came home to a family happy to see me, easy leftovers to heat up for dinner and now I'm sitting here with the family in the family room. We're listening to the Muppets, A Green and Red Christmas while I write this blog and my husband reads stuff on the computer and the little guy is drawing pictures.

Now if I can just hold onto this feeling. I keep going back to those children, those innocents slain by a crazy man, but then I have to let it go. I will be proactive. I will speak up, but I also need to enjoy my life and move on. I also realize, only not fully enough, innocents die around the world every day and some of it due to our own actions.

But I also need to grab these wonderful, peaceful moments and savor them.